ABSTRACT
Los niños que padecen enfermedades genéticas son una población vulnerable para desarrollar problemas de salud mental. Una de las anomalías congénitas más frecuentes es la fisura labiopalatina (FLAP). Objetivo: Estudiar el impacto a nivel familiar del diagnóstico de FLAP. Metodología: Alcance exploratorio, de diseño cuantitativo y corte transversal. Se construyó un cuestionario autoadministrado compuesto por un consentimiento informado, un cuestionario de datos sociodemográficos, el Child Behavior CheckList y preguntas abiertas. El muestreo fue intencional y la muestra fue de 42 casos. Resultados: El diagnóstico de una fisura labio palatina es una experiencia difícil en los padres, quienes viven este momento de manera negativa, con tristeza y miedo. Sin embargo, los niños pequeños con FLAP presentan niveles de salud mental similares a la población general.
Children with genetic diseases are a vulnerable population in the development of mental health problems. The cleft lip and palate (FLAP) is one of the most common congenital anomalies. Objective: To study the impact at family level of the FLAP diagnosis. Methodology: Exploratory and quantitative design and cross-sectional scope. A self-administered questionnaire consisting of an informed consent, a sociodemographic data questionnaire, the Child Behavior CheckList and open questions, was constructed. The sampling was intentional and composed by 42 cases. Results: The diagnosis of a cleft palatal lip is a difficult experience in parents, who experience this moment in a negative way, with sadness and fear. Nevertheless, children with FLAP present similar levels of mental health with general populatio.
Subject(s)
Humans , Male , Female , Infant , Child, Preschool , Adult , Parents/psychology , Cleft Lip/psychology , Cleft Palate/psychology , Socioeconomic Factors , Child Behavior , Mental Health , Cross-Sectional Studies , Surveys and Questionnaires , Fear , Sadness , Informed ConsentABSTRACT
El labio leporino con o sin paladar hendido se encuentra entre los principales defectos congénitos y afecta aproximadamente 1:700 de los recién nacidos vivos (1). Se considera que la etiología de esta patología es multifactorial, incluyendo una interacción entre factores genéticos y ambientales (2,3)
Cleft lip and/or palate (CL/P) are among the most prevalent of all birth defects in human, affecting approximately 1:700 live births(1). The etiology of CL/P is thought to be multifactorial, involving an interaction between genetic and environmental factors (2,3).
A fissura labial e / ou palatina (FL / P) está entre as mais prevalentes de todos os defeitos congênitos em humanos, afetando aproximadamente 1: 700 nascidos vivos (1). A etiologia da CL / P é considerada multifatorial, envolvendo uma interação entre fatores genéticos e ambientais (2,3)
Subject(s)
Cleft Lip/psychology , Pathology, Oral , Adaptation, Psychological , Causality , Cleft Palate/psychology , Emotional AdjustmentABSTRACT
El labio leporino con o sin paladar hendido se encuentra entre los principales defectos congénitos y afecta aproximadamente 1:700 de los recién nacidos vivos (1). Se considera que la etiología de esta patología es multifactorial, incluyendo una interacción entre factores genéticos y ambientales.
Cleft lip with or without cleft palate is among the major birth defects and affects approximately 1:700 of live newborns (1). The aetiology of this pathology is considered to be multifactorial, including an interaction between genetic and environmental factors.
O lábio leporino com ou sem fissura palatina está entre os principais defeitos congênitos e acomete aproximadamente 1:700 de recém-nascidos vivos (1). A etiologia desta patologia é considerada multifactorial, incluindo uma interacção entre factores genéticos e ambientais.
Subject(s)
Humans , Infant, Newborn , Cleft Lip , Congenital Abnormalities/psychology , Cleft Lip/psychology , Infant, Newborn, DiseasesABSTRACT
Introdução: A fissura labiopalatina é a malformação mais frequente da região da cabeça e afeta mais de 10 milhões de pessoas no mundo. O objetivo do estudo foi avaliar a autoestima em pacientes portadores de fissura labiopalatina em acompanhamento no Serviço de Cirurgia Plástica Craniomaxilofacial do Hospital de Clínicas de Porto Alegre, comparando-os com indivíduos não fissurados. Métodos: Estudo transversal contemporâneo, com 160 participantes, sendo 80 pacientes com fissura labiopalatina já submetidos a procedimentos cirúrgicos relacionados à afecção e, como grupo controle, 80 alunos e funcionários da rede pública de ensino. Um questionário para caracterizar o grupo e a escala de autoestima de Rosenberg foram utilizados para a coleta de dados. Resultados: Houve diferença significativa entre os grupos quanto ao estado civil, escolaridade e repetência escolar. Os pacientes com fissura labiopalatina apresentam níveis de autoestima menores em relação a indivíduos não afetados. Dentre eles, os subgrupos dos indivíduos com fissura bilateral, fissura completa, do gênero feminino, classe econômica D/E, baixa escolaridade, situação familiar reconstituída na infância e com resultados não satisfatórios em relação à comunicação, dentição e cicatriz de lábio também mostraram níveis de autoestima menores. Conclusão: Houve relação significativa entre fissura labiopalatina e baixa autoestima.
Introduction: Cleft lip and palate is the most frequent malformation of the head region and affects more than 10 million people worldwide. This study aims at evaluating the selfesteem in patients with cleft lip and palate and comparing that with the self-esteem of non-affected individuals during followup at the Department of Craniomaxillofacial Plastic Surgery of the Hospital de Clínicas of Porto Alegre. Methods: This is a cross-sectional, contemporary study with 160 participants, comprising 80 patients with cleft lip and palate who have already undergone surgical procedures for correcting the condition and 80 non-affected students and employees of the publicschool system as a control group. We used a questionnaire to characterize the group and the Rosenberg self-esteem scale for data collection. Results: There was a significant difference between groups in terms of marital status, schooling, and school retention. Patients with a cleft lip and palate had lower levels of self-esteem than non-affected individuals. Among them, the individuals with bilateral clefts or complete clefts; female gender; economic strata of D/E; low level of schooling; families reconstituted during childhood; and with unsatisfactory results concerning communication, dentition, and lip scar also showed lower levels of self-esteem. Conclusion: There was a significant relationship between cleft lip and palate and low self-esteem.
Subject(s)
Humans , Male , Female , Child , Adolescent , Adult , Middle Aged , History, 21st Century , Patients , Self Concept , Congenital Abnormalities , Surveys and Questionnaires , Cleft Lip , Nursing , Congenital Abnormalities/surgery , Congenital Abnormalities/psychology , Congenital Abnormalities/rehabilitation , Surveys and Questionnaires/standards , Surveys and Questionnaires/statistics & numerical data , Cleft Lip/psychology , Cleft Lip/rehabilitation , Cleft Lip/therapy , Nursing/methods , Nursing/standardsABSTRACT
Abstract Oral health problems can influence people's Quality of Life (QoL) because of pain, discomfort, limitations, and other esthetics problems, affecting their social life, feeding, daily activities, and the individual's well-being. Objective: To compare oral health-related quality of life (OHRQoL) of children with and without oral clefts and their families. Materials and Methods: 121 children aged from 2 to 6 years, from both sexes, enrolled in the treatment routine of the Pediatric Dentistry Clinics of a Dental School and a Hospital for Cleft Treatment were divided into two groups: Group 1 - children with cleft lip and palate; Group 2 - children without cleft lip and palate. The OHRQoL was assessed using the validated Portuguese version of the Early Childhood Oral Health Impact Scale (B-ECOHIS). The questionnaire was answered individually, only once, at a private place. Mann-Whitney U test was used to verify differences between groups. Spearman's Rho test was used to associate sex and age with quality of life. The level of significance was set at 5% (p<0.05). Results: According to the parents' perception on the OHRQoL of children with and without cleft lip and palate, oral health of children with oral clefts (Group 1) had a statistically significant impact on OHRQoL. The correlation of sex with impact on OHRQoL did not show statistically significant differences. On the other hand, the higher the age the higher the impact on QoL. Conclusions: The group comparison revealed that the cleft lip and palate negatively impacted on OHRQoL of 2 to 6-year-old children and their parents.
Subject(s)
Humans , Male , Female , Child, Preschool , Child , Quality of Life , Oral Health/statistics & numerical data , Cleft Lip/physiopathology , Cleft Palate/physiopathology , Sickness Impact Profile , Family/psychology , Case-Control Studies , Sex Factors , Surveys and Questionnaires , Cleft Lip/psychology , Cleft Palate/psychology , Age Factors , Statistics, NonparametricABSTRACT
Abstract Nonsyndromic cleft lip with or without cleft palate (NSCL±P) compromises oral health, leading to missing or malformed teeth, and hampering oral hygiene. Apart from anatomic damages, NSCL±P also culminates in an impact on the routine quality of life with social privation and psychological embarrassment. Objective To evaluate the impact of NSCL±P on oral health-related quality of life. Material and Methods The study was classified as exploratory and descriptive, with quantitative approach. Patients with NSCL±P treated between August 2013 and September 2014 at the Cleft Lip and Palate Integral Care Center (CAIF), Curitiba, Brazil, were invited to participate. Age and sex-related data were collected, as well as level of education, financial income, type of orofacial cleft, use of orthodontic and prosthetic appliances, and number of previous orofacial surgeries. Selected patients were asked to answer the Oral Impact on Daily Performance (OIDP) questionnaire designed to measure the impact of oral health on daily performances. Results The sample was composed of 103 (44.59%) women and 128 (55.41%) men, with mean age of 19.74 ± 10.20 (7-65) years. The OIDP values ranged from 1 to 175 in 114 (49.35%) patients (mean: 22.38), whereas 117 patients (50.65%) presented total OIDP value equal to zero. High negative impact of NSCL±P on daily performances was detected when associated with the female sex (p=0.037). Daily performances related to phonetics (OIDP2; 2.63) and aesthetics (OIDP5; 2.48) presented the highest average values when compared to other daily performances, except OIDP6. The main symptoms and reported oral problems comprised the aesthetic dissatisfaction. Conclusions Almost half of the patients evaluated in this study showed negative impact of NSCL±P in the performance of daily activities.
Subject(s)
Humans , Male , Female , Child , Adolescent , Adult , Aged , Young Adult , Quality of Life/psychology , Oral Health , Cleft Lip/physiopathology , Cleft Palate/physiopathology , Activities of Daily Living/psychology , Sex Factors , Surveys and Questionnaires , Cleft Lip/psychology , Cleft Palate/psychology , Sickness Impact Profile , Middle AgedABSTRACT
Abstract: the aim of this pilot study was to evaluate the effect of Presurgical Orthopedics (PSO) on the oral health-related quality of life (OHRQoL) in Children with Cleft Lip and Palate (CLP) treated in two hospitals in Chile using the Spanish version of the Child Oral Health Impact Profile (COHIP-Sp). Method: Cross-sectional study, involving 42 children with CLP (mean age 12 +/- 2.1 years; 28 men) who attended their annual checkup at the main Hospital of Valdivia and at the Hospital Fundacion Gantz in Santiago, Chile, between March and April 2016. Those who met the selection criteria were applied the COHIP-Sp scale. Based on their medical records, patients who used PSO as treatment protocol were classified as "PSO". Those who did not receive treatment with the appliance were classified as "Non- PSO". The score of the COHIP-Sp scale and its domains between the two groups was compared (t-test, p<0.05). Results: Twenty-five patients (59.5 percent) used PSO. COHIP-Sp score was 91.7 +/- 26.2 points in the PSO group, and 81.2 +/- 30.9 points in the Non-PSO group. There was no statistically significant difference (p=0.24). Conclusion: OHRQoL of patients with CLP treated with PSO was similar to that of patients not treated with PSO.
Resumen: el objetivo de este estudio piloto fue evaluar el efecto de la Ortopedia Pré-Quirúrgica Infantil (OPQI) sobre la calidad de vida relacionada con salud oral (CVRSO) en niños con Fisura Labio Palatina (FLP) tratados en dos hospitales de Chile usando la versión española del Child Oral Health Impact Profile (COHIP-Sp). Método: Estudio de corte transversal. Participaron 42 niños y niñas con FLP (edad promedio 12 +/- 2.1 años; 28 hombres) que asistieron a su control anual del Hospital Base de Valdivia y la Fundación Gantz en Santiago entre marzo y abril del año 2016. A quienes cumplieron los criterios de selección, se les aplicó la escala COHIP-Sp. Basándose en las fichas clínicas, se clasificó como "OPQI" aquellos pacientes que usaron OPQI como protocolo de tratamiento; y como grupo "No-OPQI" aquellos que no recibieron el tratamiento con la placa. Se comparó el puntaje de la escala COHIP-Sp y sus dominios entre ambos grupos (t-test, p<0.05). Resultados: Veinticinco pacientes (59.5 por ciento) usaron OPQI. La puntuación COHIP-Sp fue 91.7 +/- 26.2 puntos en el grupo OPQI y 81.2 +/- 30.9 puntos en grupo No-OPQI, diferencia estadísticamente no significativa (p=0.24). Conclusión: La CVRSO de pacientes con FLP tratados con OPQI fue similar a pacientes no tratados con OPQI.
Subject(s)
Male , Female , Humans , Adolescent , Child , Cleft Lip/psychology , Cleft Lip/therapy , Cleft Palate/psychology , Cleft Palate/therapy , Preoperative Care/instrumentation , Cross-Sectional Studies , Orthotic Devices , Pilot Projects , Preoperative Care , Quality of LifeABSTRACT
Este estudo objetiva descrever a atuação do psicólogo no Programa de Fonoterapia Intensiva, realizado em um hospital especializado em Anomalias Craniofaciais. Tratase de um estudo exploratório descritivo, realizado a partir de observação participante e pesquisa bibliográfica. A atuação do psicólogo compreendeu atividades de: 1) Remediação cognitiva; 2) Grupo de apoio e orientação aos familiares; 3) Preparo para procedimentos invasivos e 4) Assessoria à equipe interdisciplinar. Verificou-se que o psicólogo deve estar sensível às demandas individuais e organizacionais, uma vez que sua atuação prevê interações diversas com os participantes do programa, os familiares e/ou responsáveis e a equipe interdisciplinar. Observou-se desconhecimento acerca das possibilidades de atuação do psicólogo no contexto hospitalar e da atuação deste diante de populações com condições reabilitadoras específicas, como a Fissura Labiopalatina, evidenciando a necessidade de ampliar o acesso aos estudos na área.
This study aims to report the interdisciplinary experience in the Intensive Speech Therapy Program, conducted in a Craniofacial Anomalies skilled hospital. The data of this descriptive and exploratory study was carried out from participant observation and bibliographic research. The psychologist's activities included: 1) Cognitive remediation; 2) Family support and guidance group; 3) Preparation for invasive procedures and 4) Advice to the interdisciplinary team. It was verified that the psychologist must be sensitive to the individual and organizational demands, since its action foresees diverse interactions with the participants of the program, the relatives and/or responsible and the interdisciplinary team. There was a lack of knowledge about the possibilities of the psychologist in the hospital context and on the performance of the psychologist in relation to populations with specific conditions of rehabilitation, such as Cleft Lip and Palate, evidenced the need to expand access to studies in the area.
El objetivo del siguiente estudio consiste en relatar la experiencia interdisciplinaria vivida en el Programa de Fonoterapia Intensiva, hecha en un hospital especializado en Anomalías Craneofaciales. Este se trata de un estudio exploratorio descriptivo, realizado ante la observación participante y la búsqueda bibliográfica. La actuación del psicólogo comprendió actividades de: 1) Remedio cognitivo; 2) Grupo de apoyo y orientación a los familiares; 3) Preparación para procedimientos invasivos y 4) Asesoramiento al equipo interdisciplinario. Se verificó que el psicólogo debe ser sensible a las demandas individuales y organizacionales, ya que su actuación prevé interacciones diversas con los participantes del programa, los familiares y/o responsables y el equipo interdisciplinario. Se observó un desconocimiento acerca de las posibilidades de actuación del psicólogo en el contexto hospitalario y de la actuación de este frente a poblaciones con condiciones de rehabilitación específicas, como el Labio Leporino, evidenciando la necesidad de ampliar el acceso a los estudios en el área.
Subject(s)
Speech Therapy , Congenital Abnormalities/psychology , Cleft Lip/psychology , Cleft Palate/psychologyABSTRACT
Introduction: several studies have shown an association between stress caused by natural disasters, acts of terrorism and war, which have been corroborated by experimental studies in rats, with presence of oral clefts (FO) in the children of women who suffered stress in the first weeks of pregnancy. Objectives: To demonstrate the relationship between stress caused by the earthquake and tsunami that struck the central and south regions of Chile, on February 27, 2010 and the prevalence rate of FO in the disaster area. Material and Methods: Registration of ECLAMC (Latin American Collaborative Study of Congenital Malformations) Period 2000- 2011. With this information we created two groups: Group 1: Children born before the event, from 2002 to 2009 up to 6 months after earthquake, that means August 2010. Group 2: the post-earthquake period, from the seventh month after the earthquake (September) until the end of 2011. Results: the prevalence of oral clefts of the first group was 0.88 per thousand births (0.57 for cleft lip and cleft palate 0.30) .and the second group of 1.07 per thousand, (0.70 cleft lip and cleft palate 0.37) statistically significant difference (p <0.05). Conclusion: There is a positive, significant association between maternal stress and the risk of having children with FO.
Subject(s)
Female , Humans , Pregnancy , Infant, Newborn , Cleft Lip/epidemiology , Cleft Lip/psychology , Cleft Palate/epidemiology , Cleft Palate/psychology , Earthquakes , Stress Disorders, Post-Traumatic , Chile , Prenatal Exposure Delayed Effects , Risk FactorsABSTRACT
INTRODUCTION: Cleft lip and/or palate (CL/P) represent the most common congenital anomalies of the face. OBJECTIVE: To evaluate the prevalence of depressive symptoms in children and adolescents with nonsyndromic cleft lip and/or palate (nsCL/P). METHODS: We conducted an observational, case-control study, with a case study group composed of 61 patients with nsCL/P, aged 7-17 years, and a control group of 61clinically normal patients. Both groups were selected at the same institution. RESULTS: Depressive symptoms were observed in the case group (nsCL/P), but there were no statistically significant differences compared to the control group. No association was found between the two groups (case and control) in relation to sociodemographic variables: gender, age and education. CONCLUSIONS: This study identified the prevalence of depressive symptoms in children and adolescents with nsCL/P from a localized geographic population, although the results were not statistically significant when compared to the control group, not justifying the use of CDI (Child Depression Inventory) as a screening instrument for depressive symptoms in the examined population. .
INTRODUÇÃO: Fissuras labiais e/ou palatinas (FL/Ps) representam as anomalias craniofaciais mais comuns. OBJETIVOS: Avaliar a prevalência de sintomas depressivos em crianças e adolescentes não sindrômicos com FL/P (FL/PNS). MÉTODO: Foi realizado um estudo observacional de caso-controle com uma amostra populacional de conveniência, com um grupo caso (61 pacientes com FL/PNS, tendo idades entre 7 a 17 anos) e um grupo controle (61 pacientes clinicamente normais). Ambos os grupos foram selecionados na mesma Instituição. RESULTADOS: Sintomas depressivos foram observados no grupo caso (FL/PNS), mas não houve diferenças estatisticamente significantes quando comparado com o grupo controle. Não foi encontrada associação entre os dois grupos (caso e controle) em relação às variáveis sociodemográficas: gênero, idade e educação. CONCLUSÕES: Este estudo observou a prevalência de sintomas depressivos em crianças e adolescentes com FL/PNS de uma população geográfica localizada, embora os resultados não tenham sido estatisticamente significantes quando comparado com o grupo controle, não justificando assim a utilização de instrumentos rastreadores de sintomas depressivos na população analisada. .
Subject(s)
Humans , Male , Female , Child , Adolescent , Cleft Lip/psychology , Cleft Palate/psychology , Depression/psychology , Brazil/epidemiology , Cleft Lip/epidemiology , Cleft Palate/epidemiology , Depression/epidemiology , Epidemiologic Methods , Sociological FactorsABSTRACT
La Hendidura de Labio y/o Paladar (HLP) es la anomalía congénita más común que afecta a la raza humana. Es de etiología multifactorial. Determinar las características bucales de niños con HLP post-quirúrgicas que acudieron al Centro de Investigación y atención a pacientes con mal formaciones Craneofaciales y Prótesis Maxilo Facial (CIAPA), durante el año 2013. La muestra estuvo formada por 25 niños venezolanos, entre 6 y 9 años con cirugía de HLP realizada, que acudieron por primera vez a recibir tratamiento odontológico. Se realizo un análisis descriptivo y transversal. El instrumento de evaluación constó de dos partes, un cuestionario de 12 preguntas a la madre para establecer variables sociodemográficas, antecedentes personales y familiares relacionados con HLP. Se realizó un examen bucal a los niños, para determinar sus características dento-buco-maxilo-faciales Del total de la muestra estudiada (25) 84% de las madres en edades entre 20 y 35 años de edad, 70% no termino la educación básica, 95% eran amas de casa, el 50% refirió que su embarazo fue deseado, 20% reportó antecedentes familiares de HLP, 75% de la madres rechazaron al niño/a al nacer,100% presento alguna alteración en las estructuras dento-buco-palatina-maxilar, ambos géneros estaban afectados casi en la misma proporción Lo más trascendente en el tratamiento de esta malformación es el manejo interdisciplinario por un grupo de especialistas entrenados en el tema con una gran interaccio?n en la toma de decisiones de manera individual en cual debe estar el odontopediatra.
The cleft lip and/or palate (HLP) is the most common birth defect that affects the human race .is multifactorial etiology. To determine the characteristics of children with oral HLP post-surgical who came to the Center of Research and care for patients with craniofacial and evil formations Maxillo Facial prosthesis (CIAPA), during the year 2013. The sample was formed by 25 Venezuelan children, between 6 and 9 years with HLP surgery performed, who came for the first time to receive dental treatment. A descriptive and cross-sectional analysis was conducted. The evaluation instrument consisted of two parts, a questionnaire of 12 questions to the mother to establish socio-demographic variables, personal and family history related to HLP. An oral examination was carried out to children, for dento-buco-maxilo-facial characteristics Of the total study sample (25) 84% of the mothers were between 20 and 35 years of months,70% did not finish the basic education, 95% were homemakers, 50% stated that her pregnancy was unwanted, 20% reported family history of HLP, 75% of the mothers refused to child at birth, 100% present some alteration in the dento-buco-palatine-maxillary structures both genders were affected almost in the same proportion. The most transcendent in the treatment of this malformation is the interdisciplinary management by a group of specialists trained in the subject with great interaction in decision-making individually in which must be the pediatric dentist.
Subject(s)
Humans , Child, Preschool , Child , Surgery, Oral/psychology , Cleft Lip/etiology , Cleft Lip/psychology , Oral Surgical Procedures , Pediatric DentistryABSTRACT
A partir del nacimiento de un hijo(a) comienza en la familia una serie de cambios como son: proyectos, expectativas, decisiones, crecimiento personal y profesional. Cuando nace un hijo(a) con una malformación congénita entre las cuales se encuentra la hendidura labio palatina, esa situación produce un impacto drástico sobre todo en los padres, los cuales se tienen que adaptar a la situación inesperada y abrumadora de tener un hijo(a) con esa condición, afectando así su desenvolvimiento normal en el núcleo familiar. Este artículo tiene como propósito dar a conocer cuáles son los aspectos psicológicos que caracterizan a los pacientes que presentan hendidura labio palatina, debido a que, estos pacientes y sus familiares pueden presentar patrones de conducta distintos a los de otros pacientes que no presenten anomalías de este tipo
From the birth of a son begins in the family a series of changes since they are: projects, expectations, decisions, personal and professional growth. When a son is born with a congenital malformation between which one finds the HLP, this situation produces a drastic impact especially in the parents, which have to adapt to the unexpected situation to have a son with this condition, affecting this way his normal development in the familiar core. This article has as intention announce which are the psychological aspects that characterize the patients who present crack lip court, due to the fact that, these patients and his relatives can present bosses of conduct different from those of other patients who do not present anomaly of this type
Subject(s)
Female , Child , Family , Cleft Lip/psychology , Parents , Psychology, Child , DentistryABSTRACT
El niño(a) que nace con una malformación congénita como es la hendidura labio palatina lleva consigo una serie de alteraciones físicas, emocionales y psicológicas cuya corrección implica diversos tratamientos, los que deben ser realizados por múltiples especialistas, con un resultado alentador a largo plazo. El enfoque multidisciplinario en el primer momento del nacimiento de estos niños(as) es importante para lograr la rehabilitación de estos pacientes y de esta forma disminuir los niveles de ansiedad que enfrentan los padres ante la presencia de ésta anomalía. El objetivo de este artículo es dar una revisión de la literatura destacando la importancia del equipo multidisciplinario en el abordaje de la hendidura labio palatina
The child that is born with a congenital malformation since is the crack lip court ride I carries on his back a series of physical, emotional and psychological alterations which correction implies diverse treatments, which they must be realized for multiple specialists, with an encouraging long-term result. The multidisciplinary approach in the first moment of the birth of these children is important to achieve the rehabilitation of these patients and of this form to diminish the levels of anxiety that the parents face before the presence of this anomaly. The aim of this article is to give a review of the literature emphasizing the importance of the multidisciplinary equipment in the boarding of the crack lip court
Subject(s)
Humans , Male , Female , Child , Congenital Abnormalities , Cleft Lip/psychology , Parents , DentistryABSTRACT
Para una familia, el nacimiento de un hijo con una malformación como la hendidura labio palatina (HLP) es un hecho que genera un fuerte impacto psicológico en los padres. Esta investigación tuvo como objetivo general explorar las vivencias, conocimientos y sentimientos de los padres y/o madres de hijos con HLP, con el fin de tener una visión general acerca de cómo un hijo con este tipo de malformación marca la dinámica familiar, lo cual contribuirá con la orientación posterior de familias que confronten ésta situación. Los objetivos específicos que se persiguieron fueron los siguientes: a) Conocer el impacto psicológico que causó en los padres y familiares el nacimiento de un niño con HLP y su evolución posterior. b) Explorar el conocimiento que poseen los padres de niños con HLP acerca de este tipo de malformación. c) Explorar la evolución de los sentimientos de los padres de niños con HLP, en relación con el problema de su hijo. d) Conocer las creencias de los padres alrededor de la malformación congénita de HLP. Se utilizó una metodología cualitativa y se llevó a cabo a partir del método de la teoría fundamentada por lo que el análisis se hizo a partir de los procesos de codificación abierta, axial y selectiva, de acuerdo a lo propuesto por Strauss y Corbin1. Se realizaron entrevistas en profundidad a siete familias, orientadas a recolectar información que permitió la identificación de emociones, creencias y conductas de los padres y familiares de niños nacidos con HLP. Los resultados obtenidos muestran que esta malformación es etiquetada como una pequeñita broma por los especialistas médicos, hecho que desencadena una serie de reacciones emocionales intensas que marcan la dinámica familiar y el desarrollo posterior del niño malformado
For a family, the birth of a child with a congenital cleft lip and palate (CLP) is a fact that generates a strong psychological impact on parents. This study aimed to explore the experiences generally, knowledge and feelings of parents and / or mothers of children with HLP, in order to get an overview of how a child with this type of malformation brand family dynamics, which will contribute to the further guidance of families confront this situation. The specific objectives pursued were: a) To know the psychological impact it had on parents and families the birth of a child with HLP and its subsequent evolution. b) Exploring the knowledge possessed by parents of children with HLP about this type of malformation. c) Explore the development of feelings of parents of children with HLP, in relation to the problem of your child . d) Knowing the parental beliefs about HLP congenital malformation. We used a qualitative methodology and was conducted from grounded theory method so the analysis was done from the processes of open coding, axial and selective, according to what was proposed by Strauss and Corbin1. Depth interviews were conducted in seven families, aimed at collecting information that allowed the identification of emotions, beliefs and behaviors of parents and families of children born with CLP. The results show that this malformation is labeled as a tiny joke by medical specialists, a fact that triggers a series of intense emotional reactions that make the family dynamics and the later development of the child malformed
Subject(s)
Humans , Male , Child , Family Relations , Family/psychology , Cleft Lip/psychology , Psychosocial Impact , Parents/psychology , DentistryABSTRACT
Todos sabemos que la familia es la "célula fundamental de la sociedad", todos en algún momento de nuestra vida, nos pasa por la mente, querer formar una familia. Y en ese querer establecerse, viene unido consigo, el hecho de querer tener hijos(as) y la generalidad de los padres piensa: "tener un hijo(a) que se espera sea sano(a), que sea bonito(a), pero cuando eventos desafortunados ocurren como el nacimiento de un hijo(a) con hendidura labio palatina, todos esos deseos, ilusiones y proyectos van a sufrir una serie de cambios en el que se entremezclan emociones, sentimientos y creencias alrededor del nacimiento de ese hijo(a) . Este artículo tiene como finalidad realizar una revisión de la literatura del proceso que viven los padres ante la presencia de un(a) hijo(a) con este tipo de malformación
We all know that the family is the "fundamental cell of the society", all in some moment of our life, it happens to us for the mind, to want to form a family. And in this wanting to be established, it comes close with it, the fact of wanting to have children and what expects to be had: to create something that looks like the parents, that it is "nice" and "healthy", but when unfortunate events happen as the birth of a son or daughter with crack lip court, all these desires, illusions and projects are going to suffer a series of changes in that emotions, feeling and beliefs intermingle about the birth of this son or daughter. This article has as purpose realize a review of the literature of the process through that the parents live before the presence of one son or daughter with this type of malformation
Subject(s)
Humans , Male , Female , Child , Congenital Abnormalities , Cleft Lip/psychology , Pediatric DentistryABSTRACT
El labio fisurado y/o paladar hendido es una de las malformaciones congénitas más comunes en el ser humano, constituyendo uno de los problemas de salud pública más importantes en la consulta odontopediátrica. Los padres de niños y niñas con esta patología pueden presentar alteraciones desde el punto de vista físico y psicológico. Por lo tanto, la presente investigación tuvo como finalidad describir el aspecto psicológico en los padres de recién nacidos y lactantes menores con labio fisurado y/o paladar hendido que acudieron al servicio de Odontopediatría y Cirugía Pediátrica en el Instituto Autónomo Hospital Universitario de Los Andes (IAHULA), durante el período Enero - Diciembre 2007. La investigación fue de tipo descriptiva, transeccional, que utilizó como método de estudio el suministro de encuestas para la identificación de la situación socioeconómica, los niveles de bienestar psicológico, el estado - rasgo de ansiedad y la presencia de síntomas depresivos. Los resultados permitieron concluir que las variables dependientes estudiadas se vieron modificadas en la conducta de los padres ante esta patología
A cleft lip and/or palate is one of the most common congenital malformations in human beings, effectively making it one of the most important public health issues in odontopediatrics. It is worth noting that parents with kids who present this pathology can suffer from physical and psychological anguish caused by the condition; and that is why this study had as its main purpose the description of the level of the psychological wellbeing of the parents whose kids suffered from the pathology at hand examined at the Odondopediatrics and Pediatric Surgery inside the Autonomous University Hospital of Los Andes (IAHULA) between January - December 2007. This investigation was descriptive and trans-sectional in nature and utilized surveys to identify the socioeconomic situation, stress level, psychological wellbeing, the existence of anxiety, and the presence of symptoms of depression amongst parents. The conclusion offered by this research study was one in which, amongst all dependent variables, changes in stress levels had no bearing on the subjects while all the other variables affected the behavior of parents of cleft palate/lip children
Subject(s)
Humans , Male , Female , Infant, Newborn , Infant , Cleft Palate/genetics , Cleft Lip/psychology , Parents/psychology , Pediatric DentistryABSTRACT
Bilateral alveolar process fissure causes important functional and aesthetical limitations and thus difficulties in terms of social and family integration and interaction for these patients. AIM: (A) to assess motivations and expectations Treatment-wise and (B) to assess social inclusion and integration brought about by the surgery. MATERIALS AND METHODS: retrospective observational study involving 50 participants recruited among the patients submitted to the pre-maxilla repositioning procedure from January of 2003 to July of 2005 at the Centro de Atendimento Integral ao Fissurado Lábio-Palatal in Curitiba (CAIF), Paraná, and an assessment questionnaire was used. RESULTS: as far as the care protocol is concerned, results show a 90 percent success rate of surgeries. As to surgical and personal satisfaction rates are concerned, 76 percent sought treatment for personal satisfaction reasons and 86 percent reported having had more self-confidence after the surgery. CONCLUSIONS: Most of the patients submitted to the maxilla repositioning saw surgery as a continuation of the care previously given, with the expectation of better looks and self-confidence and, 96 percent of them were pleased with the results attained, which facilitated their social inclusion and re-integration.
A fissura alveolar bilateral determina limitações funcionais e estéticas, determinando dificuldades de interação e integração no âmbito familiar e social. OBJETIVO: (A) avaliar as motivações e expectativas em relação ao tratamento e (b) avaliar a inclusão e integração social obtida pelo procedimento. MATERIAL E MÉTODO: Estudo observacional, retrospectivo em 50 participantes recrutados dentre os pacientes submetidos ao procedimento de reposicionamento de pré-maxila, no período de janeiro de 2003 a julho de 2005, no Centro de Atendimento Integral ao Fissurado Lábio-Palatal em Curitiba (CAIF), Paraná, sendo aplicado questionário de avaliação RESULTADOS: Com relação ao protocolo de atendimento, os resultados evidenciaram sucesso em 90 por cento das cirurgias. Quanto às expectativas cirúrgicas e de integração social, estas mostraram que 76 por cento procuraram tratamento em busca de satisfação pessoal e, 86 por cento relataram maior autoconfiança após a cirurgia. CONCLUSÕES: A maioria dos pacientes submetidos ao reposicionamento de maxila percebeu a avaliação pós-cirúrgica como continuidade dos cuidados dispensados previamente, com expectativa da aparência e melhora da autoconfiança e, 96 por cento deles manifestaram satisfação com os resultados obtidos, o que facilitou sua inclusão e reintegração social.
Subject(s)
Child , Female , Humans , Male , Bone Transplantation/methods , Cleft Lip/surgery , Cleft Palate/surgery , Maxilla/surgery , Social Adjustment , Cleft Lip/psychology , Cleft Palate/psychology , Patient Satisfaction , Retrospective Studies , Treatment OutcomeABSTRACT
Perdas auditivas condutivas nos primeiros anos de vida podem levar a transtornos do processamento auditivo, de atenção e, conseqüentemente, dificuldades de aprendizado da comunicação. OBJETIVO: Verificar o desempenho de crianças com fissura labiopalatina no teste dicótico de dígitos, etapa de escuta direcionada; e compará-los aos de um grupo sem fissura labiopalatina. MATERIAL E MÉTODO: Fizeram parte deste estudo 52 crianças, de ambos os gêneros, na faixa etária de sete anos a sete anos e 11 meses, que foram distribuídas em dois grupos: um com crianças com fissura labiopalatina (n=27) e outro de crianças sem essa anomalia (n=25). O processo de avaliação constituiu da aplicação de um questionário, bateria de testes auditivos convencionais e aplicação do Teste Dicótico de Dígitos (etapa de escuta direcionada). RESULTADOS: No Teste Dicótico de Dígitos (etapa de escuta direcionada), foi possível observar que o grupo com FLP apresentou porcentagens de acerto inferiores ao grupo controle, tanto para a orelha direita quanto para a orelha esquerda. A análise estatística mostrou interação estatisticamente significativa para grupo versus gênero, p=0,026. CONCLUSÃO: No Teste Dicótico de Dígitos (etapa de escuta direcionada) somente as crianças do gênero feminino com fissura labiopalatina obtiveram índices de acerto inferiores às do grupo controle. Estudo prospectivo clínico.
Conductive hearing loss in the first years of life may lead to hearing processing and attention deficit disorders, and consequently to communication and learning impairments. AIM: this paper aims to examine the performance of children with cleft lip and palate in dichotic listening tests (directed attention mode) and compare them to a control group without cleft lip and palate. MATERIALS AND METHOD: fifty-two children of both genders were enrolled in the study. Their ages ranged between 7 years and 7 years and 11 months, and they were divided into two groups: a study group featuring children with cleft lip and palate (n=27) and a control group with children without this anomaly (n=25). The children were first interviewed, then underwent a series of conventional hearing tests, and lastly were applied the dichotic hearing test. RESULTS: when submitted to the dichotic listening test (directed attention mode), the children in the study group had lower scores for both ears when compared to those in the control group. Statistical significance was found for variable gender in the groups, with p=0.026. CONCLUSION: in the dichotic listening test only the girls with cleft lip and palate had lower scores than the girls in the control group. This is a prospective clinical study.
Subject(s)
Child , Female , Humans , Male , Attention , Cleft Lip/psychology , Cleft Palate/psychology , Dichotic Listening Tests , Hearing/physiology , Analysis of Variance , Case-Control Studies , Cleft Lip/physiopathology , Cleft Palate/physiopathology , Communication Disorders/diagnosis , Sex FactorsABSTRACT
Adolescentes, fissurados ou não, se vêem diante de sensações novas perante si mesmos e em relação ao sexo oposto durante a busca de parceiros afetivos, estabelecendo critérios para essa seleção. Este estudo objetivou verificar critérios que adolescentes fissurados estabelecem para selecionar parceiros afetivos e se esses diferem dos utilizados pelos seus pares, não fissurados. Participaram, respondendo a um questionário, 74 adolescentes, de 14 a 21 anos, de ambos os sexos, divididos em dois Grupos: Fissurados (GF) e Não Fissurados (GNF). Os resultados sugerem que não há diferença significativa entre os grupos considerando as características que valorizam em si e no outro para a escolha do parceiro afetivo. Verificou-se que o GNF valorizou mais o rosto do que o GF, apresentando correlação estatisticamente significativa. Tais resultados permitiram concluir que a fissura interfere na visão de si mesmo ou do outro na busca por parceiros afetivos.
Adolescents, fissured or not, experience new emotions regarding themselves and the opposite sex when they search for affective partners, establishing criteria for this selection. This study aims to know the criteria used by fissured adolescents in selecting affective partners and whether such criteria differ from those employed by their peers. A total of 74 adolescents, both genders, aged 14 to 21 years, answered a questionnaire and were divided in two groups: Fissured (FG) and Not Fissured (NFG). Results suggest there is no expressive difference between groups, considering the characteristics they value in themselves and in others, for choosing affective partners. It was verified that the NFG adolescents give more value to the face than do FG adolescents, presenting statically significant correlation. These results permitted to infer that the fissure partially interferes in the perception of oneself and of the other in the search for affective partners.
Adolescentes, con fisuras o no, se deparan ante nuevas sensaciones frente a sí mismos y en relación con el sexo opuesto durante la busca de parejas, estableciendo criterio para esa elección. Este estudio tiene como objetivo verificar los criterios que los adolescentes con fisuras establecen para elegir parejas y si tales criterios difieren de los utilizados por sus parejas que no tiene fisuras. Participaron, contestando a un cuestionario, 74 adolescentes de 14 a 21 años, de ambos sexos, divididos en dos grupos: los con fisuras (GF) y de los sin fisuras (GNF). Los resultados sugieren que no hay diferencia significativa entre los grupos, considerando las características que valoran en sí y en el otro para la elección de parejas. Se verificó que el GNF valoró más la cara que el GF, presentando correlación estadísticamente significativa. Tales resultados permitieron concluir que la fisura interfiere en la visión de sí mismo o del otro en la búsqueda de la pareja.
Subject(s)
Adolescent , Animals , Humans , Male , Choice Behavior , Cleft Lip/psychology , SpousesABSTRACT
A cirurgia Ortognática é aquela que se pratica na maxila ou na mandíbula. Seus objetivos primordiais são os de obter melhoras na oclusão dentária e na estética facial, buscando aprimorar a função mastigatória e harmonizar a face. Pessoas com deformidades dento-faciais enfrentam, além de problemas de ordem funcional, uma série de dificuldades psicossociais, inclusive um grande déficit nos relacionamentos interpessoais. O estado emocional do paciente repercute em fatores favoráveis ou desfavoráveis na sua recuperação. O presente estudo foi realizado no Hospital de Reabilitação de Anomalias Craniofaciais USP, Bauru. Foram entrevistados 15 pacientes com fissuras labiopalatinas e 15 pacientes sem fissura submetidos à cirurgia Ortognática. Objetivou-se comparar as modificações psicossociais observadas após a cirurgia Ortognática em ambos os grupos de pacientes, investigando qual obteve mais benefícios no tratamento; e analisar a compreensão e satisfação do paciente, diante dos resultados esperados e/ou não esperados com a cirurgia. Os dados apontaram diferenças importantes na significação do tratamento nos dois grupos, na expectativa para a cirurgia e nos resultados. Mesmo assim, ambos foram igualmente beneficiados. Esses dados apontam a necessidade de um trabalho sistematizado e integrado do paciente junto à equipe hospitalar para garantir a elucidação de queixas e inseguranças quanto às prováveis expectativas, assegurando uma melhor qualidade de vida.